When I began the blog there were only a few of us and we quickly got to know one another and feel we were friends. The blog started as a way to document my rekindled love of nature when we moved into this house. I have learned so much, but nothing is more important than the personal connections I have enjoyed. Thank you so much for your support and for your long-distance friendship… May we all stay well…. Michelle
16 month-old Brie was hospitalized for a week with a viral infection which caused dehydration. Her oral aversion to solid food needs to be treated in therapy. But since she eats very little solid food, she had a feeding tube put into her stomach in February so that she can gain weight while being treated. She has been hospitalized 4 times since March.
Oral aversion is a reaction to early intervention where pain was experienced and then foods besides nursing were viewed as potential pain causers.It is a thing and challenging to treat.
When the state went into lockdown at the end of March, Brie could not get the therapy she needed and it was left to my daughter to work with her on making eating fun. But she has had issues with pain from the tubing. Infections and it has been very hard. And scary.
Brie will be going to a top-rated feeding program out of town from where they live soon. That hospital feels that she will eat when she associates food with hunger which is hard as she is getting tube feeds.
It also falls on my daughter who had to leave her psychology practice to supervise the active toddler as there is a tube hooked to a pump 16 hours a day and care has to be taken. Her 5-year old brother is very patient and careful with her.
Every time she is hospitalized my husband makes the 5-hour trip to take care of Blake. I can’t make that drive on my own so I am here with the aging pets. COVID has made this so much harder as the fear just layers on fear…
Thank you for your patience with my blog…Michelle
My granddaughter Brie will be one year old soon. She has had a rough road from the pregnancy to delivery and now a special medical need. 3 weeks ago she had a GI feeding tube put in and we are so grateful that she was able to have it down before elective procedures were stopped.
She has something called “oral aversion” which means that she won’t take anything other than breast milk. No bottles, pacifiers, and not solid food. They believe it was due to oral trauma and what the endured her first day when her glucose numbers dropped which caused her to stop breathing which led to glucose being shoved into her mouth and later when she was a 3 weeks old and had to have surgery for a lip and tongue tie. So things in her mouth equaled pain.
Things progressed until her caloric needs could not be met just with breast feeding at 8 months. She is a tiny little person anyway, but she is really small. It was a difficult decision to make as she is hooked up to a pump 3 times a day for a special formula and the good news is that she is gaining weight and was making progress in therapy to learn to eat, but now there is no therapy as everything is shut down. But there is every hope that she will catch up in weight and developmentally and we pray for that.
My grandson Blake will be 5 and is doing well. He loves his little sister. He plays with her and sings songs when she cries. He is a smart and sweet little boy who we love very much….
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